Loading...
Publication
Bem-estar familiar e severidade das PEA : perceções de progenitores
| Name: | Description: | Size: | Format: | |
|---|---|---|---|---|
| 845.67 KB | Adobe PDF |
Advisor(s)
Abstract(s)
A literatura sobre implicações do diagnóstico de crianças com Perturbações do Espectro do Autismo (PEA) para o funcionamento familiar tem apresentado evidências distintas. Alguns estudos sugerem a existência de correlação positiva entre a severidade dos sintomas da criança com PEA com o sofrimento parental. Outros apontam para efeitos positivos na esfera familiar, decorrentes do diagnóstico de PEA, como o aumento da resiliência e da coesão familiar. Este trabalho, realizado na região Autónoma dos Açores, procura dilucidar implicações do diagnóstico de PEA para o funcionamento familiar, visando a conhecer perceções sobre o bem-estar em pais/mães de crianças com PEA. Participaram no estudo pais/mães de 121 crianças, com idades entres os 3 e os 11 anos. Os dados foram recolhidos por meio de entrevista semiestruturadas, e analisados com recurso a alguns métodos da análise exploratória, com o intuito de se procurar associações estatisticamente significativas. Os resultados traduzem as perceções dos cuidadores de crianças que apresentam um grau de incidência da PEA maioritariamente ligeiro ou moderado, com uma minoria de crianças a evidenciar grau de incidência severo. Apurou-se que a área mais afetada em famílias de crianças com PEA com grau de severidade ligeiro foi o bem-estar familiar e social, registando-se alterações no tempo alocado às funções laborais. As famílias de crianças com grau de PEA mais severo reportaram alterações no bem-estar familiar e social, com manifestações na esfera laboral e da socialização.
ABSTRACT: The literature on the prognosis of children with Autism Spectrum Disorders (ASD) for family functioning is relatively distinct. Some studies show the existence of a positive correlation between the severity of symptoms in children with ASD and the parents´ suffering. Others point to positive effects in the family shpere, resulting from the diagnosis of ASD, such as increased resilience and family cohesion. This study, carried out in the Autonomous Region of the Azores, seeks to clarify the impact of the diagnosis of ASD on family functioning, aiming to study the perceptions of parents of children with ASD in regard to their well-being. The study included fathers/mothers of 121 children, aged between 3 and 11 years. Data were collected through semi-structured interviews, and analysed using some methods of exploratory analysis, in order to look for statistically significant associations. the results reflect the perceptions of caregivers of children who have a mostly mild or moderate degree of ASD, with a minority of children showing a severe degree of incidence. It was found that the most affected area in families of children with mildly severe ASD was family and social well-being, with changes in the time allocated to work functions. Families of children with a more severe degree of ASD reported changes in family and social well-being, with manifestations in the labour and socialization spheres.
ABSTRACT: The literature on the prognosis of children with Autism Spectrum Disorders (ASD) for family functioning is relatively distinct. Some studies show the existence of a positive correlation between the severity of symptoms in children with ASD and the parents´ suffering. Others point to positive effects in the family shpere, resulting from the diagnosis of ASD, such as increased resilience and family cohesion. This study, carried out in the Autonomous Region of the Azores, seeks to clarify the impact of the diagnosis of ASD on family functioning, aiming to study the perceptions of parents of children with ASD in regard to their well-being. The study included fathers/mothers of 121 children, aged between 3 and 11 years. Data were collected through semi-structured interviews, and analysed using some methods of exploratory analysis, in order to look for statistically significant associations. the results reflect the perceptions of caregivers of children who have a mostly mild or moderate degree of ASD, with a minority of children showing a severe degree of incidence. It was found that the most affected area in families of children with mildly severe ASD was family and social well-being, with changes in the time allocated to work functions. Families of children with a more severe degree of ASD reported changes in family and social well-being, with manifestations in the labour and socialization spheres.
Description
XVI Congresso Internacional Galego-Português de Psicopedagogia, 1, 2 e 3 de setembro de 2021, UMinho, Braga, Portugal.
Keywords
Autismo Severidade Bem-estar Família Autism Severity Well-being Family
Citation
Caldeira, S. N., Rego, I. E., Silva, O., Sousa, Á., Pacheco, J., Botelho, T., Mota, P., Matos, P. & Romão, B. (2021). “Bem-estar familiar e severidade das PEA: perceções de progenitores”. In Atas do XVI Congresso Internacional Galego-Português de Psicopedagogia, 1-3 de setembro 2021 (pp. 888-900). Braga: Universidade do Minho.
Publisher
Universidade do Minho, Instituto de Educação, Centro de Investigação em Educação