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Vidas suspensas : um estudo descritivo-interpretativo de cuidadores informais de utentes deslocados do grupo central da Região Autónoma dos Açores
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Abstract(s)
A dispersão geográfica e a centralização hospitalar no arquipélago dos Açores determinam a necessidade de deslocar utentes do serviço regional de saúde. Esta situação implica uma mudança súbita ou uma ausência temporal considerável da sua ilha de residência, que afeta tanto os utentes como os seus acompanhantes. São estes últimos, o foco a estudar. Este estudo tem como objetivos averiguar implicações da mudança de ilha e residência por motivos de saúde na identidade percebida; apreciar o processo de identificação com novos lugares e a forma como se articula a lugares valorizados como espaços identitários; analisar a relação entre a migração forçada, a identidade e as expetativas de futuro; reconhecer fatores que promovem e obstaculizam a integração social e identificar necessidades de formação de largo espectro. O grupo de participantes foi alvo de um processo de seleção intencional orientado por critérios pragmáticos relativos à condição atual de acompanhante de utentes deslocados sob a alçada do Hospital de Santo Espírito da Ilha Terceira e deslocados há pelo menos 91 dias.
Metodologicamente remete para uma abordagem descritivo-interpretativa, em que a compreensão das perspetivas dos participantes ocupa um lugar central. Adotou-se um método misto uma vez que a avaliação das variáveis exigia técnicas distintas de recolha e análise de dados. Realizou-se, assim, um estudo transversal com uma combinatória metodológica concomitante, onde o quantitativo foi incorporado no qualitativo sempre que possível. Os resultados indicam que o núcleo central da representação social se constitui pela palavra “difícil”. A mudança de residência afeta indelevelmente as suas vidas no campo das relações familiares, sociais, culturais e laborais. Verifica-se ausência de sentimentos de culpa e sobrecarga associados ao cuidar e níveis negativos de felicidade subjetiva e de satisfação com a vida. Na integração social destaca-se positivamente o suporte informal, concretizado no apoio prestado por familiares e amigos. Constata-se fraco apego, identificação e pertença relativamente ao apego físico, contrariamente o apego social é forte. Sugerem a criação de uma rede de suporte formal que permita colmatar problemas no processo de mudança e de adaptação ao novo meio e consideram a formação como garantia de não ser afastado do sistema produtivo, adquirindo novas competências e como ocupação do tempo livre.
ABSTRACT: The geographical dispersion and hospital centralization in the Azores archipelago determine the need to move users of the regional health service. This situation implies a sudden change or a considerable temporary absence from their island of residence, which affects both users as accompanying users. The latter are the focus to be studied. This study aims to investigate the implications of changing island and residence for health reasons on perceived identity; appreciate the process of identification with new places and the way it articulates itself to places valued as spaces of identity; analyze the relationship between forced migration, identity, and future expectations; recognize factors that promote and hinder social integration and identify broad spectrum training needs. The group of participants was subject to an intentional selection process guided by pragmatic criteria related to the current condition of accompanying displaced users under the responsibility of Hospital de Santo Espírito da Ilha Terceira and displaced for at least 91 days. Methodologically, it refers to a descriptive-interpretative approach, in which the understanding of the participants' perspectives occupies a central place. A mixed method was adopted since the evaluation of the variables required different techniques of data collection and analysis. A cross-sectional study with a concomitant methodological combination was used, where the quantitative was incorporated into the qualitative whenever possible. The results indicate that the central nucleus of the social representation is constituted by the word “difficult”. The change of residence indelibly affects their lives in the field of family, social, cultural, and work relationships. There is an absence of feelings of guilt and burden associated with caring and negative levels of subjective happiness and life satisfaction. In terms of social integration, informal support stands out positively, materialized in the support provided by family and friends. There is weak attachment, identification and belonging in relation to physical attachment, by opposite, social attachment is strong. Suggest the creation of a formal support network that allows solving problems in the process of change and adaptation to the new environment as well consider training as a guarantee of not being removed from the productive system, acquiring new skills and as a leisure.
ABSTRACT: The geographical dispersion and hospital centralization in the Azores archipelago determine the need to move users of the regional health service. This situation implies a sudden change or a considerable temporary absence from their island of residence, which affects both users as accompanying users. The latter are the focus to be studied. This study aims to investigate the implications of changing island and residence for health reasons on perceived identity; appreciate the process of identification with new places and the way it articulates itself to places valued as spaces of identity; analyze the relationship between forced migration, identity, and future expectations; recognize factors that promote and hinder social integration and identify broad spectrum training needs. The group of participants was subject to an intentional selection process guided by pragmatic criteria related to the current condition of accompanying displaced users under the responsibility of Hospital de Santo Espírito da Ilha Terceira and displaced for at least 91 days. Methodologically, it refers to a descriptive-interpretative approach, in which the understanding of the participants' perspectives occupies a central place. A mixed method was adopted since the evaluation of the variables required different techniques of data collection and analysis. A cross-sectional study with a concomitant methodological combination was used, where the quantitative was incorporated into the qualitative whenever possible. The results indicate that the central nucleus of the social representation is constituted by the word “difficult”. The change of residence indelibly affects their lives in the field of family, social, cultural, and work relationships. There is an absence of feelings of guilt and burden associated with caring and negative levels of subjective happiness and life satisfaction. In terms of social integration, informal support stands out positively, materialized in the support provided by family and friends. There is weak attachment, identification and belonging in relation to physical attachment, by opposite, social attachment is strong. Suggest the creation of a formal support network that allows solving problems in the process of change and adaptation to the new environment as well consider training as a guarantee of not being removed from the productive system, acquiring new skills and as a leisure.
Description
Dissertação de Mestrado, Educação e Formação, 31 de março de 2022, Universidade dos Açores.
Keywords
Cuidador Informal Formação de Adultos Integração Social Utente Deslocado Saúde Açores Informal Caregivers Social Integration
Citation
Luís, Nuno Filipe de Sousa (2022). "Vidas suspensas: um estudo descritivo-interpretativo de cuidadores informais de utentes deslocados do grupo central da Região Autónoma dos Açores", 119 p.. Mestrado em Educação e Formação. Ponta Delgada: Universidade dos Açores. [Consult. Dia Mês Ano]. Disponível em www:<http://hdl.handle.net/10400.3/6343>